As I understand the most difficult to cure and incurable diseases are those that are encoded in DNA (DNA contains errors and invalid sequences which cause the disease). So instead of making multi-billion research and cure that costs millions of dollars, wouldn't it be easier to make everyone check their DNA and warn about presence of invalid sequences causing diseases? So that no more sick children are born and no need to buy pills for millions of dollars.
The DNA testing should be mandatory for everyone, but let parents decide for themselves if they want a child with an incurable disease. Maybe we should make them pay extra taxes if they ignore the warning.